Many of us have been feeling a lot of wanderlust lately. Having to live through multiple lockdowns is not fun, and it’s a relief that we’re slowly being allowed to start traveling again. However, for some of us, there’s a stipulation attached. Traveling when you’re autistic can be incredibly stressful even without a pandemic to contend with.
Autism Spectrum Disorder (sometimes referred to as Autism Spectrum Condition), is a neurological condition that can impact communication and socializing skills. Autistic people are highly sensory people, in that they may be hypersensitive or hyposensitive to different sensory input.
I was diagnosed with autism in 2015. In my case, I am hypersensitive to noise – this just doesn’t mean hating loud noises, it means I can’t filter sound. When the buildup becomes too much, I’m unable to function – it impacts my speech, behavior, energy levels, and more. Though I’m verbal (unlike some autistic individuals) I find it difficult to communicate with people in many circumstances and cannot read faces at all. My spatial awareness is also pretty shocking, and my motor skills leave a lot to be desired. I can sometimes be overly literal, too.
Travel presents a multitude of barriers connected to an individual’s own profile – not everyone’s needs are the same. All human beings are unique, after all.
Accessibility – meaning an environment that is designed to be used by people with disabilities – also means different things to different travelers. For me, accessibility means having information clearly communicated and broken up into smaller pieces, rather than bunched together. It can mean providing quiet rooms to allow escape from noisy environments. It can also mean that airport, railway, or hotel staff are trained in ways to assist autistic people and avoid triggers, such as forcing eye contact. Accessibility has only recently begun to improve for autistic travelers, and still has a long way to go.
Because of my hypersensitivity to noise, busy environments are a challenge, such as a shop where there are a lot of people, loud music, announcements, and so on. An airport is my least favorite place for this reason. Going through security is not fun – especially when the social expectations are not clearly spelled out. I have been shouted at in the past for not intuitively understanding the processes.
I find it very stressful when information changes at the last minute, with services sometimes offering up contradictory corrections. In the UK, the railway networks – which I rely on – are notorious for cancelling frequently or changing platforms suddenly with no warning. Having to figure that out in real time adds a degree of anxiety; if it’s a flight, that anxiety escalates.
I honestly miss traveling a lot; I am dreaming of going back to Manhattan. But the pandemic has added an extra layer of complexity. COVID-19 rules and regulations seem to change constantly, and they aren’t always well communicated.
So, how can autistic travelers move around safely and accessibly? Here is some advice based on my own prior experiences.
Knowing yourself can be helpful in negating potential sensory triggers or working your way around inaccessible environments; it’s a calculation we must make quite often as autistic people. Can I manage changes in my timetable if I have all the information written down? Who will help me if I have questions? These are a couple of very key concerns.
Planning to travel takes a lot of effort. Prior to the pandemic I had flown alone just once, on a flight to the United States. My arrival in the US coincided with that of COVID-19. Yep. I had been planning for almost a year, figuring out all the details to help me across the Atlantic from the UK.
Visual prompts help me a lot because I experience issues with executive functioning – essentially, the little Personal Assistant that we all have inside our brains does not want to play ball. I keep everything in a specially designated planner, with maps, lists, timetables, itineraries, color coding, and a pocket at the back for travel documents.
I also research access schemes or systems ahead of time. For example, the UK, some parts of the US, and a few other countries use the Sunflower Lanyard program, which when worn discreetly signals you have an invisible disability and shares lists of places nearby that offer support and help such as shops, sports facilities, transport hubs etc. You don’t have to justify yourself – all you have to do is wear it, and help will be given. Some venues, such as banks, have staff specially trained to recognize the lanyard and automatically make accommodations; in a place such as an airport, you may have to approach an assistance desk. Airport websites have more information about assistance they provide to disabled travelers – sometimes you must book in advance.
I always look for ways to negate issues before they arise. Here are some suggestions:
Britain’s Heathrow and Stanstead airports offer accessible services for autistic people, including supporting the Sunflower Lanyard scheme, providing extra assistance (which can be arranged in advance), and more. An increasing number of airports offer soothing sensory rooms. New York’s Central Park Zoo is fabulously accessible, with very clear signage and reliable schedules; if you make it to Rotterdam or London, consider attending a Street Art Tour – they have a set structure that’s well suited for autistic travelers.
Here's how to help an autistic person you're traveling with. First of all, do not shout or tell us to calm down. It’s so frustrating to be told that. Autism does not come with an “off” switch! If we can’t speak coherently (or at all), still listen – even if we are in the throes of a meltdown, or we don’t seem to be acting normally. We can’t always tell you what the problem is, which is why avoiding potential triggers always helps. Don’t force eye contact, which can be very uncomfortable for us. Helping us manage through confusing environments can go a long way, as well as ensuring our sensory needs – i.e., not too much noise – are being met. You can do that by learning the layout of airport or train terminals or finding out about what accessibility adjustments the venues offer. If you need to change a plan, be clear and upfront about it.
Planning a family trip, that includes someone with a disability, takes time and patience – but it’s worth it. Here are some tips for how to get started.
In the US Air Force, Sylvia Longmire was a counterintelligence officer specializing in the Mexican drug war. Forced into retirement due to illness, she launched a travel company for adventurous wheelchair users.
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